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Over the years both the College and the ME Association have been receiving a number of enquiries from patients living with ME/CFS bemoaning the lack of information on how anaesthesia might affect their condition, but also seeking reassurances that their needs in the perioperative period would be met with understanding and compassion.
The College acknowledged that there was not much in the way of information to support these patients nor the anaesthetists looking after them, and agreed that this gap needed to be addressed given the relatively high occurrence of the condition in the UK. Current reports estimate that there are 250,000 people living with ME/CFS at any one time in the UK, but this is likely to be a gross underestimate as traditionally it is poorly diagnosed, and many Long COVID patients fulfil ME/CFS diagnostic criteria. The most recent ONS survey reports 1.7 million people in the UK living with Long COVID.
This was new territory for the College, as producing information without a comprehensive body of evidence for such a poorly understood medical condition was something we had never done before.
At the time of writing this article we can be fairly confident that we have left the worst of the pandemic behind us. However, the NHS now faces the challenge of tackling spiralling waiting times for elective surgery. Now, more than ever, it is critical that patients (especially the most complex cases) receive, wherever possible, a comprehensive preoperative assessment.
This should include information to help them prepare for their procedure, understand the risks and, through shared decision-making discussions with their healthcare team, achieve the best possible outcomes.
Despite the disruption caused by the pandemic, the College’s Patient Information Group has continued to update existing resources and produce new ones to support patients and NHS colleagues through this difficult time. We remain committed to providing evidence-based, high-quality patient information resources, and we are delighted that we have been recertified through the Patient Information Forum Trusted Information Creator Kitemark (PIF TICK) for the third year in a row.
Authors:
- Dr Andrew Kane, NAP7 Fellow, ST7 in anaesthesia, South Tees NHS Trust
- Professor Tim Cook, RCoA Director of the National Audit Projects, Consultant in Anaesthetics and Intensive Care Medicine, Royal United Hospitals, Bath
- Dr Jas Soar, NAP7 Clinical Lead, Consultant in Anaesthetics and Intensive Care Medicine, Southmead Hospital, Bristol
After a delay due to Covid, we are pleased to say we are in the final stages of NAP7. The baseline and activity surveys are complete and being prepared for publication. The NAP7 panel is working hard to digest all possible learning from the case registry. Here we provide a brief update, with the full report coming in late 2023. We are hugely appreciative of the contribution of all anaesthetists.
The largest NAP yet
Perioperative cardiac arrest has seen the most cases reported of any NAP. The large number of cases reported is an indication of the ability of UK anaesthesia to successfully come together and focus on an important patient-focused issue, and also shows the incidence of perioperative cardiac arrest is greater than events forming the focus of previous NAPs.