Authors:
- Dr Olly Boney and Dr Cliff Shelton, PCPIE Group co-chairs
- Jenny Dorey and John Hitchman, PCPIE Group lay members
We go behind the scenes of the NIAA’s Patient, Carer and Public Involvement and Engagement Group (aka the ‘PCPIE' Group) to speak to some of its members about their work and how they believe it benefits research.
Dr Olly Boney and Dr Cliff Shelton, what does PCPIE do?
OB: In a nutshell, we review research proposals and provide feedback from a patient and/or carer perspective.
Our membership is very diverse, and most members have a completely non-clinical background so they are well placed to appraise studies through a patient-focused lens and suggest improvements to a study’s design to make it more patient-friendly.